Dinkstock ‘09 – best night ever.

February 25, 2009 | Category: Uncategorized

I’ve been meaning to update for days, but I haven’t had the time because I’ve been utterly exhausted from the events of Dinkstock ‘09. It honestly could not have gone off better. I would say that this goes down as one of the best nights of my life. So many people came out and everyone seemed in such a good mood. It was certainly a long day (3pm-1am!), but I made it through from beginning to end (barely) and though I sort of ping-pong balled my way around for a while, I do remember the entire thing. I laughed all day long, got real drunk and managed to spend more time on the floor than standing up, but completely worth it. I have vague memories of test tube shots and possibly jell-o shots? Gotta love Quincy! I got to see precious Miss Rosalie and of course basically every friend I’ve ever had. People from high school, friends from far away (oregon, minnesota, n. carolina, LA, NYC!) and the friends I see daily. I could never thank everyone involved, but please know that I do appreciate it greatly. I am extremely lucky and I’m very aware of this. My friends are the best people ever and I managed to make a few more friends; magically!

I need to say that seeing all the bands was also a highlight. I love my friends and I love their bands. I thought everyone was fantastic. Obviously I need to state that Lovers, Muggers and Thieves covering Lucero basically blew my mind. Standing with Shanahan singing/screaming the lyrics was out of this world. I also need to say that the Sharking playing four…yes FOUR Drexel songs was more than I could have asked for. Having Sasky next to me was like a blast from the past. Sept 23, 2003 – last drexel show ever – that goes down as top 5 best nights of my life as well.

So now to the more dinkstronger news. Shit sucks. Yup, I said it. Hives hives everywhere there’s hives! Last night I just gave in and popped a vicodin and passed out on my face. The vicodin makes either the itch go away or me just not give a crap about it anymore. The arthritis comes and goes per usual, right now it’s really getting into my right wrist which is actually more of an issue than you might think. It makes typing and writing a huge hassle.

I went to Dr. Lupus last week and we have a couple plans of attack. She put me on azathioprine and plaquinel. She also put me on prednisone with the understanding that I may not take it since my hate for steriods is so strong. She was right, I never filled the prescription. So the plan is that these 2 drugs will help with everything except that it takes time for my body to react to them. In six months to a year I should be feeling 100%? If not, if in 6 months things are not better, we got to plan b. There are 2 medicines originally designed for people with Lymphoma (ironic?!), but it was found that it really helps people with Lupus and ITP (oh hai!). The thing is, they are chemo medicines. One is only 4 years old and she is nervous to give it unless we have no other choice. What will it really do to me 10 years down the line? Who knows. The other has a chance of making me sterile. Fantastic! Any other shitty news you want to tell me? It’s funny because I’ve always been one to want a baby. I love kids. I mean, I don’t want one NOW, but some day. Now there’s a chance that I have to freeze an egg? Great. Only me. So yeah, this could be completely jumping the gun and let’s all hope that the meds I’m on now just make me better and we never have to go down the chemo road. Honestly, the whole thing is fucking annoying and I’m really not into Emo Dink.

Ok this entry is epically long. I apologize for being all over the place, but I wanted to try and get it all in without boring you to tears. I need to say a few more things regarding dinkstock. First, this article written by Jonathan Donaldson at the Weekly Dig makes me so happy. It is so well written and unbelievably sweet. I met this nice gentleman at the Dinkstock show and I’m so glad I did. Thank you, if you ever read this. Second, I need to give a formal thank you to Pat and Tish for putting together this show and everyone who was involved. You guys went above and beyond and I thank you whole heartedly. and Finally…of course, Jenny. I can’t really thank you because it won’t cover it, but I hope you know that without all your help I don’t know if I could have handled any of this, at all. So, tighten up.

8 Comments

  1. Jenny
    on February 25th, 2009
  2. Jenny H
    on February 25th, 2009
    2

    I’ve been on the full dose of azathioprine for about 4 months or so? (It took about 4 to build up, so 8 mos total) It definitely takes time to kick in but I see less and less symptoms as time goes by. Definitely give it a chance to get into your system. I hope you start to feel better soon!!! Glad Dinkstock was a success!

  3. Jewels
    on February 25th, 2009
    3

    I’m glad the Dinkstock extravaganza was a success!

    I’m sorry to hear of your hive explosion.

    Something’s gotta turn around soon! let’s hope you’re not having to start freezing anything!

  4. kim
    on February 26th, 2009
    4

    i’m happy to hear dinkstock was so great.
    and i second everything else jewels said! xoxo

  5. Pyat
    on February 26th, 2009
    5

    remember that time i threw you down a flight of stairs? i meant to do that. xo.

  6. Dink
    on February 26th, 2009
    6

    pyat – i actually forgot about that, but i’m so glad you reminded me. SO funny!

  7. Rach
    on March 9th, 2009
    7

    Thinking of you every day my lovely. xxxxxx

  8. Rach
    on March 9th, 2009
    8

    I know I’m rubbish at keeping in touch, but I really do think about you every day! As soon as I’ve kicked this unemployment/working for free all day and jobhunting all night habit I’m all yours I promise!!! Loving you xxxxx

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    About

    Hello. My name is Danielle (Dink to my friends). On 09/02/08 I was diagnosed with Hodgkins Lymphoma. This blog is a place to keep friends and family updated on how I feel, treatment, and life in general.

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